Symptoms: Akathisia, Brain zaps, Emotional blunting, Cognitive impairment, Insomnia, Depersonalization/Derealization, Suicidal ideation, Neuropathy, Severe anxiety/panic, Muscle/joint pain, Anhedonia, Dyskinesia, GI disturbances, Severe reactions to foods, smells, medications, Dysautonomia, POTS-like symptoms, Vibrating through entire body, Tooth pain, Swollen purple legs, Dystonia, Blurry vision, No body temperature regulation
This is a long one but I feel it's time to speak my truth. This is not all that's happened or full description of things at all. Listen to me or don't. If through my suffering I can save one person from these 100% avoidable life-changing, often life-taking injuries, that's something. 🙏💞
Nefazodone I've taken 25+ years. It's what started most of this for me. I was cut from 200 mgs to 75 in a couple weeks in Nov 2016. I had no idea what was happening to me was because of that. I found benzo groups and was told oh it's the benzo, you have to taper. I know now it was of course also the Klonopin (30+ years), but by not knowing the cut in Antidepressant (AD) like that would cause akathisia, dystonia, and so much more, I started the benzo taper a few months later in extreme injury from AD cut without knowing how injured I already was.
I lost my husband, home, relationship with my son, and had to come to upper room alone in elderly mother's house 9 years ago at the end of this year. The benzo taper took almost 6 years in a state of what I see Cold Turkey people in, only mine lasted the whole time tapering.
In 2020 I had to taper 25mgs more of the Nefazodone at the end of the Benzo taper due to the discontinuation because of raw material shortage that lasted many months, so I wouldn't be forced to have to Cold Turkey the full 75mg Antidepressant I was stuck on the years tapering Klonopin.
A month after the 25mgs more Nefazodone was tapered off over 5 months, my system couldn't take anymore and completely blew up over night. I started reacting to all food, smells, medications, even water. Akathisia went to extreme unlivable levels and more.
I'll be 4 years off the Klonopin in Sept 2026, and still suffering the same reactions with 3 foods, smells etc., akathisia, dystonia, list goes on. I suffer through the 3 to 4 foods to try and survive. Even water is still like drinking electricity and acid, which causes the akathisia to stay in me 24/7. 100% trapped in this house, mostly room/bedbound. Dysautonomia etc keeps me from being up over 10 mins.
ER kicked me out and told me to go home and eat, along with 2 immunologists and an endocrinologist 3 years ago that told me the same. My thyroid went crazy. I could not take the medication without begging to be tied to the bed to keep from jumping out of a window. No one believed me and I'm down as non-compliant everywhere.
That last trip I was forced out to endocrinologist for thyroid (who told me I can't come to Dr's office acting that way), I was in severe akathisia and dystonia in respiratory muscles, throat etc. I tried to jump from the car on the interstate (against my will, no control). This is akathisia.
The ER, immunologist, endocrinologist were within weeks of each other 3 years ago. I've had 0 medical support since. No Dr will see me on telehealth/video as a new patient to have blood work or anything checked. I only have my 82 year old mom that I would be dead without and am forever grateful for, but she doesn't know how to Google, read emails etc, so has been very limited in helping with finding help. But she does believe me.
I'm still stuck on the last of the 50mg Nefazodone with no idea how to endure a taper in this shape still, but react to it every night taking it.
I have never been through a more inhuman, disbelieved, straight evil experience in my life, and I'm not an anomaly by far. With no support medically or otherwise.
I'm currently dealing with stabbing throbbing tooth pain causing everything to be heightened, with no idea what to do. The trip to a dentist I can't imagine, much less having numbing agent put in me, if I could even get there. Just drinking water is almost unlivable. The amount of electricity, stinging, vibrating I endure daily I know I can't endure increasing with medication/numbing, and this level of constant throbbing pain I can't endure much longer either. 😔
Trapped like a rat for years now. I will live or not at this point. I've done my very best to endure and survive.
Please research what you put in your body and who/what information you trust. Psychiatry is nothing but professional guessers for profit. God bless and keep going with every ounce you can muster up. 🙏 May your/the truth be believed someday. 🙏